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Archive for physical therapy

What a day this has been

By Goddess in Progress · Comments (23)·   February 13th, 2013

Ellie and I headed downtown after dropping the kids off this morning. We had an appointment at Children’s Hospital, which she is unfortunately old enough to recognize and remember.

We have such ambivalence about this place.

Ellie’s feeding therapist wanted her to have a swallow study to make sure she isn’t aspirating when she swallows liquids. Her last study was when she was only one month old, at which point she was still having a small amount of aspiration of thin liquids. That day in March 2011 was the last time she took anywhere near a full feed by mouth. (Which she promptly puked up in spectacular fashion – aspiration was only one of our problems.)

Anyways, we have no reason to believe she is still aspirating now. She drinks small amounts of water from sippy cups without a problem and has never had pneumonia (a tell-tale sign of a kid who aspirates). But we wanted to be sure, so there we were.

Ellie did exactly as I thought she would. She was slightly anxious in the waiting room, but completely lost her mind as soon as we were brought down to the radiology suite. She screamed like she was being stabbed, and was only momentarily calmed by iPads, bubbles, and songs. But in the end, I got her to calm down enough to take a few sips from her cup (before she realized the barium was nasty), and they saw five or six successful swallows.

While I was pretty sure this was going to be the outcome, it feels really good to have this particular box checked off for the time being. Our issues with swallowing and eating are far from over, but at least for now I can definitively say “she does not aspirate.” Huzzah.

BUT WAIT, THERE’S MORE.

At 2:30, Ellie had her usual physical therapy appointment. For the vast majority of her two years, we have had PT with our beloved Janet every week. We’ve had ups and downs and plateaus, but it seemed like once she started crawling, it has been a really steady improvement.

This afternoon, we watched her all-but-run from activity to activity. She scooted, she climbed, she squatted, she walked up and down stairs (with help). Give her two hands to hold and she can jump and clear both feet off the ground.

Today's PT activity. "Scoot scoot!"

We had started to spread our appointments out to every two or three weeks, and talked about going to once a month. But as we watched this crazy almost-two-year-old careen around the room, we were hard pressed to say why. Does she have totally typical agility, balance, as strength for a two-year-old? Not quite. But nothing she needs to work on is going to take anything other than time and practice. Not specific exercises and tasks, just running around like the little kid she is.

Ellie graduated from physical therapy today.

Sure, if she stalls in her development or I get worried about something, we can always go back. But as of right now, we are done with PT.

Sweetest pea on a cold day. We're working on that whole "keep your hat on" thing.

When you have a kid with a big asterisk next to her name like Ellie, seeing so many doctors and specialists, the numbers just seem to multiply. Someone always wants to suggest you see ANOTHER doctor. Audiology! Endocrine! Is there any department you haven’t visited yet? Get in there! I’ve started a Google Doc to keep track of everyone because I can no longer remember all of their names.

So, to be able to cross one or two things off of the list, or at least tuck them away on a shelf for the time being, is such a lovely turn of events that I burst into tears on the way home.

Comments (23)
Categories : Hospital, Toddlers
Tags : aspiration, physical therapy, swallow study

Ending the lockout

By Goddess in Progress · Comments (10)·   December 15th, 2011

For the last six weeks, Ellie has been on strike during her weekly physical therapy appointments. Oh sure, she would seem agreeable enough with her big smiles and blowing raspberries.  But rolling over? Which she is perfectly capable of doing? No thanks. Grabbing toys? No interest. Nada.

It got to the point that going to the appointments was almost embarrassing. “I swear, she really does roll over at home. She does… you know… touch things from time to time instead of weirdly recoiling her hand when you try to give her something.”

We had really been spoiled. For the first four or five months of PT, there was noticeable improvement virtually every single week. Either she’d be doing something altogether new, or would be steadier and stronger at a previous skill.  Halloween came along, and Ellie decided it was time to take a little break.

Phyiscal Therapy

She wasn’t going backwards, exactly. In reality, it was clearly just a plateau. Normal. To be expected, even, after making so much progress. But with a baby who is already delayed, it’s frustrating when you stop seeing progress you’ve gotten used to. It’s hard not to get anxious over it.

Thankfully, in the last week, Ellie seems to be picking up the developmental pace once again.  Sitting up even steadier than before, and finally starting to use her hands to grab a toy or stuffed animal, instead of just using them to prop herself upright. In fact, not only will she pick up the rings from the floor in front of her, but she’ll transfer them to the other hand, AND put them in her mouth! Fine motor, cognition, and oral de-sensitizing, all in one easy toy!

Phyiscal Therapy

The fine motor stuff was starting to worry me, but I’m happy to say there’s been a noticeable improvement recently. Lots more grabbing and reaching, and suddenly in love with one of those four-key piano toys from my mother-in-law. She was even kind enough to show off for both the physical therapist AND the early intervention therapist this week. Everyone is thrilled to have her back with the program.

Phyiscal Therapy

Even the feeding therapy stuff has been going a little better. She likes to explore those teething biscuit cookies, and lets me poke around her mouth with this textured brush we use to try to tone down her gag reflex.  They’re small steps, but good ones for us.

Though I knew on a logical level that a plateau in her progress was totally normal and shouldn’t be worrisome, waiting for new skills to show up was really stressful and had me feeling quite discouraged. On an average day, I am only just holding the worry at bay, so it doesn’t take much to push me over the edge.  Seeing her master new tricks again? Suddenly all feels right in the world.

Comments (10)
Categories : Child Development, Infants
Tags : Early Intervention, feeding therapy, Fine motor, Gross motor, occupational therapy, physical therapy
   

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