This isn’t normally my style, but I have decided that every little bit is worth a shot. If you’re the praying/meditating/energy-focusing type and have some spiritual energy to spare, we’d love every good thought we can get.
We still don’t know what Eleanor’s “Thing” is. We probably won’t for a little while, still. But what I do know is that the main issue keeping her at the hospital instead of home is the fact that she is currently not taking feeds by mouth (which is probably a symptom of the larger Thing, but we don’t know the complete roots yet). She did a swallow study on her first day at the Big Hospital, and it showed she was aspirating both thin and thick liquids. She was not able to protect her airway when she swallowed. Since then, she has been fed only by tube to keep her breathing safe, and they’re basically giving her a few weeks to see if it improves with a little more time to grow and mature.
This Thursday is her repeat study. It is by no means the final word on how she will ultimately take in nutrition in the long-term. But it’s a big one to see if she is making any improvement, whether she can start taking some of her feeds by mouth, and whether we are one step closer to coming home. If there’s no improvement, we may start talking about alternatives to getting her able to take nutrition at home, but I’d rather not go there. No, I want that stinkin’ yellow tube out of her nose, I want her to be able to fill her own belly, and I want her to come home. Period.
So. If you have a moment, any spare thoughts, prayers, or general requests to the universe for her to wow everyone on the feeding team with her dramatic improvement on Thursday, that would be awesome. It’s a bit of a long shot, but it’s not impossible.
Fingers and toes are crossed.
My thoughts are coming your way for Eleanor wowing the feeding team on Thursday and in general. Hang in there, the docs will figure this out.
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Ramping up the prayers!
Sending prayers, go Ellie go, you can do it! Oh my, she looks so stinkin’ cute in this picture too, love her hair clip:)
Eleanor is just so cute. I’m sending good thoughts to you all!
I am sending lots and lots of positive thoughts and good wishes for your adorable Eleanor. Also, I wanted to let you know I saw your big kiddos at the local playspace a week and a half ago or so, and they looked happy and carefree. They looked like they are doing just fine!
Aw god love her beautiful little face
Sending good and positive progress thoughts your way. What a little darling 
I’m all crossed for you. In the Jewish way, of course. Sending squeezes, love and positive vibes. And wishing I could do more…
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Hugs, prayers, and positive energy for little miss E!
Thinking of you and your beautiful family daily. Sending you lots of warm and happy thoughts and lots of good energy. xoxoxo
Happy, positive thoughts and prayers both today, tomorrow and everyday. Thinking of you and much love too. I want her to come home so she can wear the present Liam sent her! Hugs
Charlene @CharChronicles recently posted..Barefoot Books Tour
Holding Ellie and your whole family in the Light. What a beautiful spirit.
Best.
Susan McKey recently posted..Bottled Rainbows!